"Our verdict is clear: patients' preferences and values are not properly captured in health technology assessment (HTA) and in clinical guidelines.”

"Patient experience, emotional support and convenience of care were relatively neglected fields in the reviewed guidelines. Patient engagement was rarely presented in the guideline development phase.”and goes on to say"Even if patient-centricity is a leading paradigm in cancer policy, based on our research it is not yet standard practice to include patients or patient organisations at all appropriate levels of decision-making processes that are related to their health and well-being. Patient engagement should be an integral part of cancer care decision-making.”